Elizabeth Cox, MD, PhD, and her research collaborators have developed two recently released HIPxChange toolkits focusing on family-centered rounds and on patient engagement in patient-centered outcomes research.
The Toolkit on Patient Partner Engagement in Research (TOPPER) provides the complete set of orientation materials originally developed for engaging patient partners (children and teens with type 1 diabetes and their parents) on Dr. Cox’s PCORI-funded study “Family-Centered Tailoring of Pediatric Diabetes Self-Management Resources.” Researchers can adapt these materials for a variety of types of patient partners.
The Family-Centered Rounds Toolkit shows how to create an effective and sustainable intervention for improving family-centered rounds. It includes a checklist and a training curriculum, and has versions geared specifically to clinicians and researchers.
Both toolkits are available as free downloads from the HIPxChange website.