Congratulations to Ryan Coller, MD, MPH, Principal Investigator, and Mary Ehlenbach, MD, Co-Investigator, who were recently awarded a subaward for up to 4 years from the University of Colorado-Denver and the Health Resources and Services Administration (HRSA). This project, worth $75,000 of total costs in Year 1, is under the direction of University of Colorado overall PI Christopher Stille, MD, and is entitled “Children and youth with special health care needs research network programs.” The Wisconsin team is leading development of 2 projects for the new National Research Network for Children and Youth with Special Health Care Needs (CYSHCNet).
In the first project, Dr. Coller and his team led a multidisciplinary national expert modified-Delphi panel and series of stakeholder focus groups to identify the top priorities for a new National Research Agenda for Children and Youth with Special Health Care Needs.
The second project, “Assessing Confidence at Times of Increased Vulnerability (ACTIV),” is a multisite study involving UW, Harvard, and UCLA that’s led by Dr. Coller’s team. The goal of this study is to evaluate the feasibility and acceptability of an innovative health information technology tool to collect repeated measures of caregiver confidence of the health of children with medical complexity over time.