Elizabeth D. Cox, MD, PhD and colleagues recently published new findings about the content validity of the Patient-Reported Outcomes Measurement Information System® (PROMIS®) Family Relationships measure in the journal, Health and Quality of Life Outcomes. This NIH-funded study used qualitative methods to assess whether this new patient-reported outcome measure reflects the experiences of children with chronic conditions. The authors found that the Family Relationships measure, which had been developed and validated in a general pediatric population, does capture the experience of family relationships for chronically ill children. For the study, over 30 children with asthma, sickle cell disease, or type 1 diabetes and their parents were interviewed about their family experiences and the impact of chronic illness on those relationships. Interviewees described their family relationships in a manner consistent with the facets of the PROMIS® metric. Findings suggest potential utility for this metric in research and clinical practice with chronically ill children and their families.
Flynn KE, Kliems H, Saoji N, Svenson J, Cox ED. Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness. Health Qual Life Outcomes. 2018;16:203. doi: 10.1186/s12955-018-1030-8