Dataset Resources

UW Division of Hospital Medicine & Complex Care Datasets

The UW DATA Group can share our de-identified datasets with other researchers.

To request use of an HMCC dataset, please submit a research proposal using the specified consultation form.

Name / Study Link Key Topics Data Type Population Time frame Location Notes
Restarting Safe Education and Testing for Children with Medical Complexity
(ReSET)
Return to school; COVID-19; Rapid testing; Vaccines; Viral precautions; Varies by aim Caregivers of Children with medical complexity 4/2021 – 3/2023 Nationally, Wisconsin Available publicly via the RADx Data Hub
ReSET National Survey of School and Health Perceptions
(ReSET NSSHP)
School; COVID-19; Child health Cross-Sectional Caregivers of Children with Special Health Care Needs 9/2023,

11/2023 – 12/2023

National Request use via the CYSHCN Primary Data Center.
Family CMC Innovation Research Cohort with Longitudinal Evaluation (Family CIRCLE) School; COVID-19; Health services utilization; Health outcomes; Home health care; Caregiver self-efficacy Longitudinal cohort study Caregivers of Children with Special Health Care Needs Ongoing

10/17/2024 – 04/30/2024

 

National Request use via the CYSHCN Primary Data Center

 

[More information coming soon!]

Public Datasets

To facilitate dataset selection, we have compiled a list of publicly available datasets. While we do not own nor maintain these datasets, we have utilized them in our research and can recommend their utility and reliability.

Name Key Topics Data Type Population Time frame Location Notes
National Survey of Children’s Health (NSCH) Child health; School; Health services and experiences; Cross-sectional / Longitudinal Non-institutionalized children in the US ages 0-17 years Yearly, 2016 – 2023 National
Healthcare Cost and Utilization Project (HCUP) Health services utilization (Inpatient, ED, Ambulatory); Readmissions; Cross-sectional / Longitudinal Pediatrics, Adults – Varies by database Yearly, time frame varies by database National HCUP contains 8 databases on varied health services topics.
Medical Expenditure Panel Survey (MEPS) Health care access and utilization; Health conditions; Insurance; Cross-sectional / Longitudinal Pediatrics, Adults – Varies by database Yearly, 1996 – 2022 National