UW Division of Hospital Medicine & Complex Care Datasets
The UW DATA Group can share our de-identified datasets with other researchers.
To request use of an HMCC dataset, please submit a research proposal using the specified consultation form.
| Name / Study Link | Key Topics | Data Type | Population | Time frame | Location | Our Research | Notes |
| Restarting Safe Education and Testing for Children with Medical Complexity (ReSET) |
Return to school; COVID-19; Rapid testing; Vaccines; Viral precautions; | Varies by aim | Caregivers of Children with medical complexity | 4/2021 – 3/2023 | Nationally, Midwest | -Qualitative: Jolliff et al.
-Feasibility: Coller at al. -Policy: Kelly et al. -Disparities: Chen et al. |
Available publicly via the RADx Data Hub |
| ReSET National Survey of School and Health Perceptions (ReSET NSSHP) |
School; COVID-19; Child health | Cross-Sectional | Caregivers of Children with Special Health Care Needs | 9/2023,
11/2023 – 12/2023 |
National | -In progress
|
Request use via the CYSHCN Primary Data Center. |
| Family CMC Innovation Research Cohort with Longitudinal Evaluation (Family CIRCLE) | Varies by Survey; School; COVID-19; Health services utilization; Health outcomes; Home health care; | Longitudinal cohort study | Caregivers of Children with Special Health Care Needs | 10/17/2024 – Present
|
National | -In progress
|
Request use via the CYSHCN Primary Data Center |
| Medication Safety at Home (Meds@HOME) | Medication delivery; caregiving networks; health literacy | Randomized control trial | Caregivers of Children with medical complexity | 11/2023 – 8/2024
|
Midwest | -Protocol: Werner et al. | Request use via DATA Group |
Public Datasets
To facilitate dataset selection, we have compiled a list of publicly available datasets. While we do not own nor maintain these datasets, we have utilized them in our research and can recommend their utility and reliability.
| Name | Key Topics | Data Type | Population | Time frame | Location | Our Research | Notes |
| National Survey of Children’s Health (NSCH) | Child health; School; Health services and experiences; | Cross-sectional / Longitudinal | Non-institutionalized children in the US ages 0-17 years | Yearly, 2016 – 2023 | National | -In progress
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| Healthcare Cost and Utilization Project (HCUP) | Health services utilization (Inpatient, ED, Ambulatory); Readmissions; | Cross-sectional / Longitudinal | Pediatrics, Adults – Varies by database | Yearly, time frame varies by database | National | –Kelly et al. | HCUP contains 8 databases on varied health services topics. |
| Medical Expenditure Panel Survey (MEPS) | Health care access and utilization; Health conditions; Insurance; | Cross-sectional / Longitudinal | Pediatrics, Adults – Varies by database | Yearly, 1996 – 2022 | National | –Coller et al. |