2018 Down Syndrome Medical Interest Group – USA (DSMIG-USA®) Annual Symposium

This symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers. Residents and trainees are welcome to attend.

DSMIG-USA® 2018 Annual Symposium - Conference Faculty
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA
Brian Chicoine, MD
Medical Director, Advocate Medical Group Adult Down Syndrome Center
Family Medicine Residency of Advocate Lutheran General Hospital
Park Ridge, IL
Emily Jean Davidson, MD, MPH, RYT
Attending Physician
Director, Prenatal Care for the Down Syndrome Program
Boston Children’s Hospital
Boston, MA
Amber Escamilla
Self-Advocate
Dallas, TX
Amy Feldman Lewanda, MD
Medical Geneticist
Children’s National Health System
Washington, District of Columbia
Andrea Kelly, MD, MSCE
Associate Professor of Pediatrics
Children's Hospital of Philadelphia
Philadelphia, PA
Andrew McCormick, MD
Attending Physician
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, PA
Ann Ostrovsky, MD
Assistant Professor of Ophthalmology, Director of Keratoconus Program
New York University School of Medicine
New York, NY
Lorri Riley, DPM
Podiatrist
A Step Ahead
Spearfish, SD 57783
Sally Shott, MD
Professor of Pediatrics
Division of Pediatric Otolaryngology
Cincinnati Children’s
Cincinnati, OH
Alyssa Sigel, MD
Attending Physician
Children's Hospital of Philadelphia
Philadelphia, PA
Brian Skotko, MD
Associate Professor of Pediatrics
Director, Down Syndrome Program
Massachusetts General Hospital
Harvard Medical School
Boston, MA
Joanna Spahis, MSN, RN
Genetics Clinical Nurse Specialist
Children's Health System of Texas
Dallas, TX
Kishore Vellody, MD
Associate Professor of Pediatrics
Children's Hospital of Pittsburgh, Diagnostic Referral Service
Medical Director, Down Syndrome Center of Western PA
Pittsburgh, PA

 

Overall Conference Objective

The purpose of this activity is to provide an interdisciplinary forum for discussion and education for health care professionals interested in providing state-of-the-art care to persons with Down Syndrome (DS). This activity will be in a format that allows participants to assess their current practice and make adjustments based on evidence-based best practice recommendations.

Course Objectives

Upon completion of this activity, participants will be able to:

  • Identify best practice management strategies for individuals who have Down Syndrome (DS) and their caregivers.
  • Recognize and discuss trends in care for people with DS with interdisciplinary colleagues.
  • Formulate best-practice care plans with interdisciplinary colleagues to incorporate into their practice.
 

Elements of Competence

This CME activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Target Audience

Healthcare providers and researchers with a special interest in the care of persons with Down Syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech Therapists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

Administrative Features/CME

Fees (pre-payment is required!)

Early Registration: Through May 31, 2018:

  • Members of DSMIG-USA® in good standing: $225; Please see email for member coupon code
  • Non-members of DSMIG-USA ®: $250; USE COUPON CODE DSMIGNM18
  • Students/Trainees: $175; USE COUPON CODE DSMIGST18
 

Registration: June 1 to July 6, 2018:

  • All Attendees: $275; USE COUPON CODE DSMIGJUNE18
 

Half Day Rate (AM/PM):

  • $150 (no lunch provided); USE COUPON CODE DSMIGHALF18
 

After July 6, registration only if space allows for $300. On-site registration available based on space.

Registration Fees for other Events:


Welcome Reception and Poster Viewing

  • Thursday, July 12, 2018, 6:30-8:00 PM, $25/person
 

Clinic Coordinators Meeting

  • Friday, July 13, 2018, 6:30-8:30 PM, $15/person
 

Adult Healthcare Guidelines Workgroup Meeting

  • Saturday, July 14, 2018, 7:30-9:30 AM, $25/person
 

Regression Workgroup Meeting

  • Saturday, July 14, 2018, 9:45-11:30 AM, $25/person
 

DS-ASD Workgroup Meeting

  • Saturday, July 14, 2018, 12:15-2:00 PM, $25/person
 

The conference fee includes all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks. Note: lunch is not included in the half-day registration. Cancellations through May 21 will receive a full refund minus the $20 cancellation fee; May 22 -July 7 there will be a 50% refund. No refunds will be made for cancellations received after July 7.

Registration Instructions

  • Visit https://ce.icep.wisc.edu/dsmig-2018
  • Select the Register/Enroll Tab
  • Select login or register and follow the instructions for UW-Madison NetID log in or Visitor account creation/log in
  • Follow any prompts to complete or update your profile information
  • Click the Register tab, select the appropriate fee and “Add to Cart”
  • Select “Checkout” and follow the prompts to pay for the conference.
 

Confirmations

All registrations are confirmed via email. If you do not receive a confirmation, please call (608) 262-7226.

Accreditation Statement

Joinly Accredited ProviderIn support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA.  The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

CREDIT DESIGNATION STATEMENTS

American Medical Association (AMA)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 7.75 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

The University of Wisconsin–Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for .775 continuing education units (CEUs) or 7.75 hours.


Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) that the faculty, authors, planners, and other persons who may influence content of this CE activity disclose all relevant financial relationships with commercial interests in order to allow CE staff to identify and resolve any potential conflicts of interest.  Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s).  Detailed disclosures will be made available in the activity handout materials.

Hotel Accommodations

The DSMIG-USA® Annual Symposium will be held at the Sheraton Dallas Hotel and Convention Center, 400 North Olive Street. Dallas, TX. This is in conjunction with the National Down Syndrome Congress Annual Convention, which will also be held at the Sheraton Dallas Hotel and Convention Center.

Rooms for DSMIG-USA® attendees will be available at the Sheraton Dallas Hotel beginning April 16, 2018 at the rate of $159/night plus tax. A hotel reservation link will be provided following your online registration to the Symposium.

Internet Access for Meeting Rooms

Internet access is available in the Sheraton Dallas Hotel and Convention Center Meeting Rooms on July 12-14, 2018 for $35 per day or $100 for all three days ($5 discount for 3-day package). This allows access for one personal device. Access can be reserved as part of your Annual Symposium registration process. If you are interested in internet access, please register for the symposium and for internet access no later than July 1, 2018.
** Individual internet access codes will be provided to participants based on the number of days internet is requested for. Once individualized internet access code are activated on your device, it will be active for the number of days paid for during the registration process. This cannot be changed after your registration is submitted.

 

Annual Symposium Committee

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Director, Down Syndrome Program
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Anna Esbensen, PhD
Associate Professor of Psychology
Associate Professor of Pediatrics Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

Katie Frank, PhD, OTR/L
Occupational therapist
Adult Down Syndrome Center of Lutheran General Hospital
Park Ridge, IL

Judy Kim, MD
Assistant Professor of Family Medicine
Baylor College of Medicine
Houston, TX

Nancy J. Roizen, MD
Professor of Pediatrics
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Rainbow Babies and Children's Hospital
Cleveland, OH

Noemi Alice Spinazzi, MD
Medical Director - Down Syndrome Clinic at UCSF Benioff Children's Hospital Oakland
Associate Clinical Professor at UCSF School of Medicine
Oakland, CA

Maria A. Stanley, MD, FAAP
Annual Symposium Committee Co-Chair
Clinical Associate Professor of Pediatrics
University of Wisconsin School of Medicine and Public Health
Medical Director, Waisman Center
Director, Down Syndrome Clinic
Madison, WI

 

Poster Planning Group

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Director Down Syndrome Program
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD

Anna Esbensen, PhD
Associate Professor of Psychology
Associate Professor of Pediatrics Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

David S. Stein, PsyD
Pediatric Psychologist, New England Neurodevelopment
Adjunct Professor, Children and Families at Risk (CFAR) and Clinical Psychology
William James College
Newton, MA

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

For Further Information

For conference information, please contact mzink [at] pediatrics.wisc.edu (Mallory Zink); Phone: (608) 263-8542.

Other Activities

**Light beverages and food will be provided at these activities

Thursday, July 12, 2018 to Saturday, July 14, 2018

Activities for registered DSMIG-USA® symposium attendees. Please note the additional fees to attend some of these activities.

DSMIG-USA® Member Meeting

Thursday, July 12, 2018
5:30-6:30 PM
Free Event

All members and meeting attendees are invited to attend to learn more about the work of the organization over this past year and about opportunities to become more involved.

Welcome Reception and Poster Viewing

Thursday, July 12, 2018
6:30-8:00 PM
Fee: $25 per person

The DSMIG Annual Symposium reception is a great time for you to meet the greater community of professionals who care about and care for individuals with Down syndrome.  You can network, meet new people, visit with old friends, and see new research and information on the posters.  Light refreshments will be served and a cash bar will be available.

Clinic Coordinators Meeting

Friday, July 13, 2018
6:30-8:30 PM
Facilitator: Terri Couwenhoven
Fee: $15 per person

This meeting is for Clinic Coordinators or professionals who assume this role as part of their position within Down syndrome Clinics. During this event, participants have an opportunity to network, share resources, hear about innovative projects and activities, as well as identify needs and challenges. The meeting typically takes place the evening following the DSMIG-USA Symposium. Highly recommended for new staff.

Adult Healthcare Guidelines Workgroup Meeting

Saturday, July 14, 2018
7:30-9:30 AM
Facilitators: George Capone and Peter Bulova
Fee: $25 per person

This Workgroup aims to present a summary of Literature reviews completed by DSMIG-USA members 2017-2018 and to discuss next steps for the Adult Healthcare Guidelines Workgroup.

Regression Workgroup Meeting

Saturday, July 14, 2018
9:45–11:30 AM
Facilitator: Brian Chicoine
Fee: $25 per person

This Workgroup will review work to date developing a description, definition, and diagnostic approach to regression seen in people with Down syndrome with an emphasis on regression seen in adolescents and young adults. The group will solicit further information from participants based on experience and literature review.

DS-ASD Workgroup Meeting

Saturday, July 14, 2018
12:15–2:00 PM
Facilitator: Brian Belden
Fee: $25 per person

This Workgroup aims to present a review of the literature on DS-ASD focusing on the description of individuals falling under this diagnosis, procedures for assessing autism in individuals with Down syndrome, and interventions to address the problems associated with DS-ASD. The workgroup will also discuss research questions and goals for next year.

 

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Mallory Zink at (608) 263-8542.