2019 Down Syndrome Medical Interest Group – USA (DSMIG-USA®) Annual Symposium

This symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers. Residents and trainees are welcome to attend.

DSMIG-USA® 2019 Annual Symposium - Conference Faculty
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
George Capone, MD
Director, Down Syndrome Clinic and Research Center
Catherine Franklin, MD, MBBS, MPhil
Director, Mater Intellectual Disability and Autism Service
Thessa Hilgenkamp, PhD
Dept. of Kinesiology and Nutrition
University of Illinois at Chicago
Arwen Jackson, CCC-SLP
Children’s Hospital Colorado
Cassie Karlson, MD
Medical Director - Simon Skojdt Child and Adolescent Behavioral Health Unit
Riley Hospital for Children, Indiana
Judy Lu Kim, MD
Assistant Professor, Department of Medicine, Transition Medicine
Baylor College of Medicine
Jenny Maybee, CCC-SLP
Children’s Hospital Colorado
Andrew J. Nowalk, MD PhD
Associate Professor and Clinical Director
Division of Infectious Disease,
UPMC Children’s Hospital of Pittsburgh
Michelle L. Palumbo, MD,
Consulting Psychiatrist for the MGH Down Syndrome Program
Diego Real de Asúa MD, PhD.
Attending physician, Adult Down Syndrome Unit,
La Princesa University Hospital, Madrid, Spain
Jillian F. Rork, MD
Assistant Professor, Pediatric Dermatology
Section of Dermatology
Dartmouth-Hitchcock Medical Center
Children’s Hospital at Dartmouth-Hitchcock
Elise Sannar, MD
Sie Center for Down Syndrome
Children's Hospital Colorado
Sean Smith, PhD
Professor of Special Education, University of Kansas
Associate Researcher, Center for Research on Learning
Edward R. Smith M.D.
Co-Director, Cerebrovascular Surgery and Interventions Center
Director, Pediatric Cerebrovascular Surgery, Boston Children's Hospital
Chair, Neurosurgery
Department of Neurosurgery, Vascular Biology Program, Harvard Medical School
David Tolleson
Executive Director, National Down Syndrome Congress
Kishore Vellody, MD- President, National Down Syndrome Congress
Medical Director, Down Syndrome Center of Western PA
Professor of Pediatrics, University of Pittsburgh School of Medicine
 

 

Overall Conference Objective

Statement of Need:

This symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG - USA members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses, Down syndrome clinic coordinators, psychologists, dieticians, occupational and physical therapists, speech and language pathologists and social workers.

Target Audience

Healthcare providers with a special interest in the care of persons with Down Syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech Therapists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

Learning Objectives

As a result of their active participation in this course, learners will be able to:

  • Identify best practice management strategies for individuals who have Down Syndrome (DS) and their caregivers
  • Recognize and discuss trends in care for people with DS with interdisciplinary colleagues
  • Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice.
 

Elements of Competence

This CE activity has been designed to change learner competence and focuses on the American Board of Medical Specialties’ areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Evaluation

We urge you to complete the online evaluation through the conference link in the ICEP Learner Portal where you obtained your credit (see Administrative Features/CME tab). Your feedback is appreciated by speakers and important to the future planning of this and other professional development activities.

Administrative Features/CME

Fees (pre-payment is required!)

Conference fees include all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks. Note: lunch is not included in the half-day registration.

Cancellations through May 10 will receive a full refund minus the $20 cancellation fee; May 11 - June 14 there will be a 50% refund. No refunds will be made for cancellations received after June 14.

The DSMIG-USA® Annual Symposium will be held at the David L. Lawrence Convention Center, 1000 Fort Duquesne Boulevard, Pittsburgh, PA 15222. This is in conjunction with the National Down Syndrome Congress Annual Convention, June 27-30, 2019.

Early Registration: Through May 10, 2019:

  • Members of DSMIG-USA® in good standing: $250
  • Non-members of DSMIG-USA: $300 with COUPON DSMIG19EB
  • Students/Trainees: $175
 

Registration: May 11 to June 21, 2019:

  • Members of DSMIG-USA® in good standing: $275
  • Non-members of DSMIG-USA ®: $325
  • Students/Trainees: $175
 

Half Day Rate (AM/PM):

  • $150 (no lunch provided)
 

After June 21, registration only if space allows for $350. On-site registration available based on space.

*If you’d like to contribute towards a scholarship for trainees, international attendees, etc., please click here to make a donation.

Registration Fees for other DSMIG-USA Events:

**Light beverages and food will be provided at these events

Please note the additional fees to attend some of these activities.

Education Event for local providers

  • Wednesday, June 26, 2019, 6-8:30 PM, free event!
 

DSMIG-USA® Members Meeting - Come to learn more about what the organization has been working on this past year and opportunities to become more involved.

  • Thursday, June 27, 2019, 5:30-6:30 PM, rooms 403-405, free event
 

Welcome Reception and Poster Viewing – The DSMIG Annual Symposium reception is a great time for you to meet the greater community of professionals who care about and care for individuals with Down syndrome. You can network, meet new people, visit with old friends, and see new research and information on the posters. Light refreshments will be served and a cash bar will be available.

  • Thursday, June 27, 2019, 6:30-8:00 PM, rooms 401-402, $25/person
 

Clinic Coordinators meeting

  • Friday, June 28, 2019, 6:30-8:00 PM, room 323, $15/person
 

Childhood DS-ASD Workgroup Meeting – This workgroup will include a presentation reviewing the most current literature covering descriptions of individuals diagnosed with DS-ASD, recommendations for assessment, and strategies for intervention. We will also present the status of research projects that are underway or in the planning stages and establish goals and timelines for those projects. Finally, we will begin the important job of deciding on what we believe at this time to be recommended practices for evaluating and treating problems associated with DS-ASD and how best to disseminate that information to providers.
Facilitator: Brian Belden.

  • Saturday, June 29, 2019, 7:30 AM- 9:15 AM, room 323, $25/person
 

Adult Health Care Workgroup Meeting – This workgroup aims to discuss next steps for the Adult Healthcare Guidelines project that is currently underway. Initiate discussion about training health care providers to provide dementia care and ongoing data collection efforts underway in many of our adult clinics.
Facilitators: George Capone and Peter Bulova

  • Saturday, June 29, 2019, 9:30-11:30 AM, room 323, $25/person
 

Adult Regression Workgroup Meeting - This workgroup will review work to date developing a description, definition, and diagnostic approach to regression seen in people with Down syndrome with an emphasis on regression seen in adolescents and young adults. The group will solicit further information from participants based on experience and literature review.
Facilitator: Brian Chicoine

  • Saturday, June 29, 2019, 11:45 AM –1:45 PM, room 323, $25/person
 

Other Activities:

Remember that the meetings of DSMIG-USA and the National Down Syndrome Congress (NDSC) are separate meetings held at the same venue. Registration is required for each meeting. If you also plan to attend the NDSC Annual Conference June 27-30th 2019, go to the NDSC website for more information.

Registration Instructions

  • Visit https://ce.icep.wisc.edu/dsmig19
  • Select the Register/Enroll Tab
  • Select login or register and follow the instructions for UW-Madison NetID log in or Visitor account creation/log in
  • Follow any prompts to complete or update your profile information
  • Click the Register tab, select the appropriate fee and “Add to Cart”
  • Select “Checkout” and follow the prompts to pay for the conference.
 

If you have symposium questions, please contact Dottie Winger at winger2 [at] wisc.edu or (608)263-8542.

Accreditation Statement

Joinly Accredited ProviderIn support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and Down Syndrome Medical Interest Group - USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

CREDIT DESIGNATION STATEMENTS

American Medical Association (AMA)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 7.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for 0.75 continuing education units (CEUs) or 7.5 hours.


Policy on Disclosure

It is the policy of the University of Wisconsin–Madison ICEP that the faculty, authors, planners, and other persons who may influence content of this CE activity disclose all relevant financial relationships with commercial interests in order to allow CE staff to identify and resolve any potential conflicts of interest. Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be available prior to the start of the conference.

Hotel Accommodations

Discounted room blocks for DSMIG-USA ® attendees will be available at the Omni William Penn Hotel at the rate of $159 per night plus state and local tax (14%) and hotel fees through 5:00pm ET, June 4, 2019. Here is the Omni William Penn Hotel reservation link.

Internet Access for Meeting Rooms

WiFi access is available for purchase onsite from the convention center for access in the meeting rooms or exhibit halls. Free WiFi is available only in the lobby and concourse areas of the convention center.

 

Annual Symposium Planning Committee

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Director, Down Syndrome Program
Boston Children's Hospital

Katie Frank, PhD, OTR/L
Annual Symposium Committee Co-Chair
Occupational therapist
Advocate Medical Group Adult Down Syndrome Center
Park Ridge, IL

Judy Lu Kim, MD
Assistant Professor of Family Medicine
Center for Transition Medicine
Baylor College of Medicine
Houston, TX

Andrew McCormick, MD
Associate Professor of Pediatrics
UPMC Children’s Hospital of Pittsburgh
Director of Healthy Transitions Program,
Down Syndrome Center of Western PA
Medical Director UPMC Vascular Anomaly Center
Pittsburgh, PA

Noemi Alice Spinazzi, MD, FAAP
Physician, Primary Care
Medical Director, Charlie's Clinic (Down Syndrome Clinic)
Co-Director, Developmental and Behavioral Pediatrics rotation at BCHO
Assistant Clinical Professor, UCSF School of Medicine

Maria A. Stanley, MD, FAAP
Annual Symposium Committee Co-Chair
Clinical Associate Professor of Pediatrics
University of Wisconsin School of Medicine and Public Health
Medical Director, Waisman Center
Director, Down Syndrome Clinic
Madison, WI

Manda Ratcliff
Medical Program Assistant, Senior
Waisman Center
Developmental Pediatrics/Genetics, Madison, WI

Poster Planning Group

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Director Down Syndrome Program
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD

Anna Esbensen, PhD
Associate Professor of Psychology
Associate Professor of Pediatrics Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

Mary Pipan, MD
Clinical Associate Professor of Pediatrics
Perelman School of Medicine at the University of Pennsylvania
Director, Trisomy 21 Program
Children's Hospital of Philadelphia
Philadelphia, PA

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

David S. Stein, PsyD
Pediatric Psychologist, New England Neurodevelopment
Adjunct Professor, Children and Families at Risk (CFAR) and Clinical Psychology
William James College
Newton, MA 

 

For Further Information

For conference information, please contact winger2 [at] pediatrics.wisc.edu (Dottie Winger); Phone: (608) 263-8542.

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Dottie Winger at (608) 263-8542.