2017 Down Syndrome Medical Interest Group – USA (DSMIG-USA®) Annual Symposium

This symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers. Residents and trainees are welcome to attend.

DSMIG-USA® 2017 Annual Symposium - Conference Faculty
Oguzhan Alagoz, PhD
Associate Professor of Industrial and Systems Engineering
University of Wisconsin-Madison
Madison, WI
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA
Brian Chicoine, MD
Medical Director, Advocate Medical Group Adult Down Syndrome Center
Family Medicine Residency of Advocate Lutheran General Hospital
Park Ridge, IL
Stephen Corey, MD
Associate Clinical Professor
Department of Obstetrics, Gynecology, and Reproductive Sciences
University of Pittsburgh School of Medicine
Co-director Magee-Womens Hospital of UPMC Center for Women with Disabilities
Pittsburgh, PA

Kathleen Feeley, PhD
Associate Professor
Founding Director of the Center for Community Inclusion
Long Island University
Brookville, New York

Katie Frank, PhD, OTR/L
Occupational therapist III
Advocate Medical Group Adult Down Syndrome Center
Park Ridge, IL
Seth Keller, MD
Co-Chair National Task Group on Intellectual Disabilities and Dementia Practices
President Emeritus, American Academy of Developmental Medicine and Dentistry
Lumberton, New Jersey
Barry Martin, MD
Division of General Internal Medicine
University of Colorado Hospital
Aurora, CO
Michelle Palumbo, MD
Instructor, Pediatrics and Psychiatry
Massachusetts General Hospital for Children
Harvard Medical School
Boston, MA
Kathy Service, MS, RN, FNP-BC, CDDN
Nurse Practitioner Consultant
Northampton, MA
Brian Skotko, MD
Assistant Professor of Pediatrics
Co-Director, Down Syndrome Program
Massachusetts General Hospital
Harvard Medical School
Boston, MA
V. Salil Upasani, MD
Assistant Clinical Professor
Department of Orthopedic Surgery
Rady Children’s Hospital San Diego
University of California San Diego
San Diego, CA
Kishore Vellody, MD
Associate Professor of Pediatrics
Children's Hospital of Pittsburgh, Diagnostic Referral Service
Medical Director, Down Syndrome Center of Western PA
Pittsburgh, PA

 

Overall Conference Objective

The purpose of this activity is to provide an interdisciplinary forum for discussion and education for health care professionals interested in providing state-of-the-art care to persons with Down Syndrome (DS). This activity will be in a format that allows participants to assess their current practice and make adjustments based on evidence-based best practice recommendations.

Course Objectives

Upon completion of this activity, participants will be able to:

  • Identify best practice management strategies for individuals who have Down Syndrome (DS) and their caregivers.
  • Recognize and discuss trends in care for people with DS with interdisciplinary colleagues.
  • Formulate best-practice care plans with interdisciplinary colleagues to incorporate into their practice.

Elements of Competence

This CME activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Target Audience

Healthcare providers and researchers with a special interest in the care of persons with Down Syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech Therapists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

Administrative Features/CME

Fees (pre-payment is required!)

Early Registration: Through May 21, 2017:

  • Members of DSMIG-USA® in good standing: $225
  • Non-members of DSMIG-USA ®: $250
  • Students/Trainees: $175
 

Registration: May 22 to July 16, 2017:

  • All Attendees: $275
 

Half Day Rate (AM/PM):

  • $150 (no lunch provided)
 

After July 16, registration only if space allows for $300. On-site registration available based on space.

Registration Fees for other Events:


Welcome Reception and Poster Viewing

  • Thursday, July 20, 2017, 6:30-8:00 PM, $25/person
 

Adult Healthcare Guidelines Workgroup Meeting

  • Saturday, July 22, 2017, 7:30-10:30 AM, $25/person
 

Regression Workgroup Meeting

  • Saturday, July 22, 2017, 10:45 AM – 12:30 PM, $25/person
 

The conference fee includes all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks. Note: lunch is not included in the half-day registration. Cancellations through May 21, 2017 will receive a full refund minus the $20 cancellation fee; May 22, 2017-July 7, 2017 there will be a 50% refund. No refunds will be made for cancellations received after July 7, 2017.

Three Easy Ways to Register

  • Register Online!
  • By phone: (608) 262-1397. Please call and pay by MasterCard, Visa or American Express.
  • By fax: 1-800-741-7416 (In Madison, fax 265-3163)
 

Confirmations

All registrations are confirmed via email. If you do not receive a confirmation, please call (608) 262-1397.

Accreditation Statement

Joinly Accredited ProviderIn support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA.  The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

CREDIT DESIGNATION STATEMENTS

American Medical Association (AMA)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 8 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

The University of Wisconsin–Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for .8 continuing education units (CEUs) or 8 hours.


Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) that the faculty, authors, planners, and other persons who may influence content of this CE activity disclose all relevant financial relationships with commercial interests in order to allow CE staff to identify and resolve any potential conflicts of interest.  Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s).  Detailed disclosures will be made available in the activity handout materials.

Hotel Accommodations

At this time, rooms at the NDSC Convention rate at all three contracted hotels are sold out for most nights of the convention, however there still may be rooms available at a different rate. You are welcome to secure your room independently. The NDSC is managing a waitlist to assist attendees in securing a reservation at the contracted rate. Again, they cannot guarantee a room meeting your needs will become available; however, when and if a cancellation occurs NDSC will notify you in the order in which your application has been received. Traditionally, cancellations have occurred in late June or early July, so your patience is appreciated. If you would like to register for the waitlist, click this link: https://www.ndsccenter.org/register-now/hotel-waitlist/

Internet Access for Meeting Rooms

Internet access is available in the Sheraton Grand Sacramento Meeting Rooms on July 20-22, 2017 for $25 per day. This allows access for one personal device. Access can be reserved as part of your Annual Symposium registration process. If you are interested in internet access, please register for the symposium and for internet access no later than July 7, 2017.
** Individual internet access codes will be provided to participants based on the number of days internet is requested for. Once individualized internet access code are activated on your device, it will be active for the number of days paid for during the registration process. This cannot be changed after your registration is submitted.

 

Annual Symposium Committee

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities
Child Neurology
Co-Director Down Syndrome Program
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Anna Esbensen, PhD
Assistant Professor of Psychology
Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

Katie Frank, PhD, OTR/L
Occupational therapist
Adult Down Syndrome Center of Lutheran General Hospital
Park Ridge, IL

Nancy J. Roizen, MD
Professor of Pediatrics
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Rainbow Babies and Children's Hospital
Case Western Reserve University
Cleveland, OH

Noemi Alice Spinazzi, MD
Medical Director - Down Syndrome Clinic at UCSF Benioff Children's Hospital Oakland
Associate Clinical Professor at UCSF School of Medicine
Oakland, CA

Maria A. Stanley, MD, FAAP
Annual Symposium Committee Co-Chair
Clinical Associate Professor of Pediatrics
University of Wisconsin School of Medicine and Public Health
Medical Director, Waisman Center
Director, Down Syndrome Clinic
Madison, WI

Amber Wright, MSN, RN, CPNP
The Pediatric Down Syndrome Clinic
Barrow Neurological Institute at Phoenix Children's Hospital
Phoenix, AZ

 

Poster Planning Group

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Co-Director Down Syndrome Program 
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD

Anna Esbensen, PhD
Assistant Professor of Psychology
Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

David S. Stein, PsyD
Pediatric Psychologist
Co-Director, The Down Syndrome Program
The Developmental Medicine Center
Boston Children's Hospital
Harvard Medical School
Boston, MA

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

For Further Information

For conference information, please contact mzink [at] pediatrics.wisc.edu (Mallory Zink); Phone: (608) 263-8542.

Other Activities

Thursday, July 20, 2017 to Saturday, July 22, 2017

Activities for registered DSMIG-USA® symposium attendees. Please note the additional fees to attend some of these activities.

DSMIG-USA® Member Meeting

Thursday, July 20, 2017
5:30-6:30 PM
Free Event

All members and meeting attendees are invited to attend to learn more about the work of the organization over this past year and about opportunities to become more involved.

Welcome Reception and Poster Viewing

Thursday, July 20, 2017
6:30-8:00 PM
Fee: $25 per person

The DSMIG Annual Symposium reception is a great time for you to meet the greater community of professionals who care about and care for individuals with Down syndrome.  You can network, meet new people, visit with old friends, and see new research and information on the posters.  Light refreshments will be served and a cash bar will be available.

Clinic Coordinators Meeting

Friday, July 21, 2017
6:30-8:30 PM
Facilitator: Terri Couwenhoven
Free Event

This meeting is for Clinic Coordinators or professionals who assume this role as part of their position within Down syndrome Clinics. During this event, participants have an opportunity to network, share resources, hear about innovative projects and activities, as well as identify needs and challenges. The meeting typically takes place the evening following the DSMIG-USA Symposium. Highly recommended for new staff.

Regression Workgroup Meeting

Saturday, July 22, 2017
7:30–9:15 AM
Facilitator: Brian Chicoine
Fee: $25 per person

This Workgroup will review work to date developing a description, definition, and diagnostic approach to regression seen in people with Down syndrome with an emphasis on regression seen in adolescents and young adults. The group will solicit further information from participants based on experience and literature review, as well as explore potential for developing an article for publication.

Adult Healthcare Guidelines Workgroup Meeting

Saturday, July 22, 2017
9:30-12:30 PM
Facilitators: George Capone and Peter Bulova
Fee: $25 per person

This Workgroup aims to present a summary of Literature reviews completed by DSMIG-USA members 2014-2016 and to discuss a proposed DRAFT guideline statement on each Topic presented as well as next steps for the Adult Healthcare Guidelines Workgroup.

 

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Mallory Zink at (608) 263-8542.