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CONFERENCE INFORMATION

Friday, July 22, 2016
JW Marriott Orlando, Grande Lakes - Orlando, FL

Register Online

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Friday, July 22, 2016

Time Activity
Morning
7:00 Registration/Check-in and Continental Breakfast
8:00 Welcome and Announcements
8:15 Dental Care Across the Lifespan for People with Down Syndrome
Kristin Compton, DDS
Camila Di Giorgio, DDS
9:45 Update on Health Care Guidelines and Down Syndrome Growth Charts
Marilyn Bull, MD
Mary Pipan, MD
10:15 Break
10:35 An Overview of Research on Effective Education for Children with Down Syndrome and Implications for Educational Strategies in the Classroom, Inclusive Practice, Individual IEPs and Teacher Education
Sue Buckley, OBE
11:15 Pharmacological Interventions to Improve Cognition and Adaptive Functioning in Down Syndrome: Strides to Date
Priya Kishnani, MD
11:55 Q & A
Sue Buckley, OBE
Priya Kishnani, MD
Nancy Roizen, MD (Moderator)
Afternoon
12:15 Lunch & Poster Viewing
1:30 National Down Syndrome Congress (NDSC): A Resource for Families and Professionals
Kishore Vellody, MD
David Tolleson (Executive Director)
Marilyn Tolbert, EdD (Board President)
1:45 Updates on the National Down Syndrome Biobank
Brian Skotko, MD, MPP
2:00 Improving Care for Patients with Down Syndrome: The Role of Integrated Care
Richard Antonelli, MD, MS
Nicole Baumer, MD, MEd
3:30 Break
3:45 Gross Motor Milestones for Children with Down Syndrome
Patricia Winders, PT
4:15 Self Talk Revisited: Pathology or an Exceptional Tool for Learning and Responding to Challenges?
Dennis McGuire, PhD
4:45 Top Articles 2015-2016
Peter Bulova, MD
5:30 Closing Remarks
Nancy Roizen, MD
5:45 Adjourn & Poster Viewing
6:30 End



2016 Down Syndrome Medical Interest Group – USA
(DSMIG-USA®) Annual Symposium

This symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers. Residents and trainees are welcome to attend.

 

DSMIG-USA® 2016 Annual Symposium - Conference Faculty
Richard Antonelli, MD, MS
Assistant Professor of Pediatrics
Harvard Medical School
Medical Director Integrated Care
Boston Children’s Hospital Boston, MA
Nicole Baumer, MD, MEd                                
Neurodevelopmental Disabilities
Child Neurology                
Co-Director, Down Syndrome Program 
Boston Children’s Hospital
Harvard Medical School
Boston, MA
Sue Buckley, OBE
Director of Science and Research, Down Syndrome Education International
Emeritus Professor of Developmental Disability
University of Portsmouth, UK
Kirkby Lonsdale, Cumbria UK
Marilyn Bull, MD
Morris Green Professor of Pediatrics
Developmental Pediatrics
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, IN
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA
Kristin Compton, DDS
Director, Developmental Dentistry Program
Lee Specialty Clinic
Louisville, KY
Camila Di Giorgio, DDS
Resident in Developmental Dentistry
Lee Specialty Clinic
Advanced Education in General Dentistry at NYU Lutheran Medical Center
Louisville, KY
Priya Kishnani, MD, MB BS
Professor of Pediatrics
Division Chief, Medical Genetics
Duke University School of Medicine
Durham, NC
Dennis McGuire, PhD
Senior Consultant
Global Down Syndrome Foundation
Denver, CO
Mary Pipan, MD
Clinical Director, Trisomy 21 Program
Attending Physician, Developmental Behavioral Pediatrics
The Children's Hospital of Philadelphia
Philadelphia, PA
Nancy J. Roizen, MD
Professor of Pediatrics
Director, Division of Developmental/
Behavioral Pediatrics and Psychology
Rainbow Babies and Children's Hospital
Case Western Reserve University
Cleveland, OH
Brian Skotko, MD, MPP
Assistant Professor of Pediatrics
Co-Director, Down Syndrome Program
Massachusetts General Hospital
Harvard Medical School
Boston, MA
Marilyn Tolbert, EdD
Board President,
National Down Syndrome Congress
Director and Jean W Roach Chair of Laboratory Schools
Texas Christian University
Fort Worth, TX
David Tolleson
Executive Director
National Down Syndrome Congress
Roswell, GA
Kishore Vellody, MD
Associate Professor of Pediatrics
Children's Hospital of Pittsburgh, Diagnostic Referral Service
Medical Director, Down Syndrome Center of Western PA
Pittsburgh, PA
Pat Winders, PT
Director of Therapies and Senior Physical Therapist
Anna and John J. Sie Center for Down Syndrome
Children’s Hospital Colorado
Aurora, CO

 

Overall Conference Objective

The purpose of this activity is to provide an interdisciplinary forum for discussion and education for health care professionals interested in providing state-of-the-art care to persons with Down Syndrome (DS). This activity will be in a format that allows participants to assess their current practice and make adjustments based on evidence-based best practice recommendations.

Course Objectives

Upon completion of this activity, participants will be able to:

  • Identify best practice management strategies for individuals who have Down Syndrome (DS) and their caregivers.
  • Recognize and discuss trends in care for people with DS with interdisciplinary colleagues.
  • Formulate best-practice care plans with interdisciplinary colleagues to incorporate into their practice.

Elements of Competence

This CME activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Target Audience

Healthcare providers and researchers with a special interest in the care of persons with Down Syndrome including, but not limited to: Primary Care Physicians (MD and MD/PhD), Specialty Physicians, Physician Assistants (MPAS), Nurse Practitioners (RN/MSN/DNP), Occupational Therapists (MS/OTD), Physical Therapists (MS/DPT), Speech Therapists (MS/PhD), Psychologists (PhD), Dietitians (MS/PhD), Social Workers (BSW/MSW), Trainees, and Down Syndrome Clinic Coordinators.

Administrative Features/CME

Fees (pre-payment is required!)

Early Registration: Through June 5, 2016
Members in good standing $200
Non-members $225
Students/Trainees $175

Registration: June 6 to July 17, 2016
All Attendees $250

Half Day Rate (AM/PM): $150 (no lunch provided)

After July 17, registration only if space allows for $275. On-site registration available based on space.

The conference fee includes all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks. Note: lunch is not included in the half-day registration. Cancellations through June 5 will receive a full refund minus the $20 cancellation fee; June 6 through July 8, 2016 there will be a 50% refund. No refunds will be made for cancellations received after July 8, 2016.

Three Easy Ways to Register

  • Online
  • By phone: (608) 262-1397. Please call and pay by MasterCard, Visa or American Express.
  • By fax: 1-800-741-7416 (In Madison, fax 265-3163)

Confirmations

All registrations are confirmed via email. If you do not receive a confirmation, please call (608) 262-1397.

Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the University of Wisconsin School of Medicine and Public Health and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin School of Medicine and Public Health is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation Statement

The University of Wisconsin School of Medicine and Public Health designates this live activity for a maximum of 7.5 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

The University of Wisconsin–Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for 0.75 continuing education units (CEUs) or 7.5 hours.

Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin School of Medicine and Public Health that the faculty, authors, planners, and other persons who may influence content of this CME activity disclose all relevant financial relationships with commercial interests in order to allow CME staff to identify and resolve any potential conflicts of interest. Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be made in the activity handout materials.

Hotel Accommodations

The DSMIG-USA® Annual Symposium will be held at the JW Marriott Grande Lakes, 4040 Central Florida Parkway, Orlando, Florida. This is the site of the National Down Syndrome Congress Annual Convention, July 21-24, 2016.

Hotels are sold out.

All conference rooms are currently booked. For additional lodging options, please visit the NDSC website.

Internet Access for Meeting Rooms

Internet access is available in the JW Marriott and Ritz-Carlton Meeting Rooms for a one-time fee of $40. This allows access for one personal device from July 21-24, 2016. Access can be reserved as part of your Annual Symposium registration process. If you are interested in Internet access, please register for the symposium and for internet access no later than June 19.

 

Annual Symposium Committee

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities
Child Neurology
Co-Director Down Syndrome Program
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Anna Esbensen, PhD
Assistant Professor of Psychology
Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH

Katie Frank, PhD, MHS, OTR/L
Occupational Therapist
University of Illinois at Chicago
Chicago, IL

Arelis Mártir-Negrón, MD, FACMG
Medical Geneticist
Division of Clinical Genetics & Metabolism
Nicklaus Children Hospital
Palm Beach Gardens Outpatient Center
Palm Beach Gardens

Kim McConnell, MD, FAAP
Annual Symposium Committee Co-Chair
Gillette Children’s Specialty Healthcare
St. Paul, MN

Nancy J. Roizen, MD
Professor of Pediatrics
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Rainbow Babies and Children's Hospital
Case Western Reserve University
Cleveland, OH

Maria A. Stanley, MD, FAAP
Annual Symposium Committee Co-Chair
Clinical Associate Professor of Pediatrics
University of Wisconsin School of Medicine and Public Health
Medical Director, Waisman Center
Director, Down Syndrome Clinic
Madison, WI

Amber Wright, MSN, RN, CPNP
The Pediatric Down Syndrome Clinic
Barrow Neurological Institute at Phoenix Children's Hospital
Phoenix, AZ

Poster Planning Group

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Co-Director Down Syndrome Program 
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD

David S. Stein, PsyD
Pediatric Psychologist
Co-Director, The Down Syndrome Program
The Developmental Medicine Center
Boston Children's Hospital
Harvard Medical School
Boston, MA

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

For Further Information

For conference information, please contact mzink [at] pediatrics [dot] wisc [dot] edu (Mallory Zink); Phone: (608) 263-8542.



Other Activities

Thursday, July 21, 2016 to Saturday, July 23, 2016

Activities for registered DSMIG-USA® symposium attendees. There is no additional charge to register.


DSMIG-USA® Member Meeting
Thursday, July 21, 2016
5:30-6:30 PM

All members and meeting attendees are invited to attend to learn more about the work of the organization over this past year and about opportunities to become more involved.

Welcome Reception and Poster Viewing
Thursday, July 21, 2016
6:30-8:00 PM

Clinic Coordinators Meeting
Friday, July 22, 2016
6:30-8:30 PM
Facilitator: Terri Couwenhoven

Adult Healthcare Guidelines Workgroup Meeting
Saturday, July 23, 2016
7:30-10:30 AM
Facilitators: George Capone and Peter Bulova

This Workgroup aims to present a summary of Literature reviews completed by DSMIG-USA members 2014-2016 and to discuss a proposed DRAFT guideline statement on each Topic presented as well as next steps for the Adult Healthcare Guidelines Workgroup.

Regression Workgroup Meeting
Saturday, July 23, 2016
10:45 AM – 12:30 PM
Facilitator: Brian Chicoine

This Workgroup will review work to date developing a description, definition, and diagnostic approach to regression seen in people with Down syndrome with an emphasis on regression seen in adolescents and young adults. The group will solicit further information from participants based on experience and literature review, as well as explore potential for developing an article for publication.



The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Mallory Zink at (608) 263-8542.



Last updated: 04/13/2016
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