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Friday, July 11, 2014
JW Marriott Indianapolis - Indianapolis, IN

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Friday, July 11, 2014

Time Activity
7:00 Registration/Check-in and Continental Breakfast
8:00 Welcome and Announcements
8:15 The Health Care Transition into Adult Life for Youth with Down Syndrome
Mary Ciccarelli, MD
9:00 Employment, Unemployment, Communication and Technology in Adults with Down Syndrome
Libby Kumin, PhD, CCC-SLP
9:45 Audience Discussion and Q and A
Mary Ciccarelli, MD
Libby Kumin, PhD, CCC-SLP
Moderated by W. Carl Cooley, MD
10:05 Break
10:20 Feeding, A Challenge and Triumph for Down Syndrome
Marilyn Bull, MD
Laura Bobinsky, CCC-SLP
Joanne Whelan, RD
Donna U. Watkins MSN, NNP-BC
11:50 An Update on the New Down Syndrome Growth Charts
Babette Zemel, PhD
12:10 Lunch & Poster Viewing
1:15 Behavioral Concerns in Down Syndrome: Cognitive Etiology, Manifestations, and Interventions
Anna J. Esbensen, PhD
David S. Stein, PsyD
2:30 Top 5 Down Syndrome Articles of the Past Year
Peter Bulova, MD
3:15 Break
3:30 Workshop A: Otolaryngologic Manifestations in Down Syndrome: An Update of Current Literature and Treatment Options
Sally Shott, MD

Workshop B: Group Discussion on Health Care for Adults with Down Syndrome
George Capone, MD
Peter Bulova, MD
4:30 National Down Syndrome Registries and Resources
Daniel Coury, MD
Brian Skotko, MD, MPP
Melissa Parisi, MD, PhD
5:30 Adjourn & Poster Viewing

2014 Down Syndrome Medical Interest Group – USA
(DSMIG-USA) Annual Symposium

This symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG - USA members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses, Down syndrome clinic coordinators, psychologists, dieticians, occupational and physical therapists, speech and language pathologists and social workers. Residents and trainees are welcome to attend.


DSMIG-USA 2014 Annual Symposium - Conference Faculty
Laura Bobinsky, CCC-SLP
Pediatric Speech-Language Pathologist,
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, Indiana
Marilyn Bull, MD
Morris Green Professor of Pediatrics, Developmental Pediatrics,
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, Indiana
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
University of Pittsburgh
Pittsburgh, Pennsylvania
George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, Maryland
Mary Ciccarelli, MD
Associate Professor, Clinical Medicine and Pediatrics
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, Indiana
W. Carl Cooley, MD
Chief Medical Officer, Crotched Mountain Foundation
Medical Director, Center for Medical Home Improvement
Greenfield, New Hampshire
Dan Coury, MD
Professor, Clinical Pediatrics and Psychiatry
Chief, Developmental/Behavioral Pediatrics
Nationwide Children’s Hospital
The Ohio State University College of Medicine
Columbus, Ohio
Anna Esbensen, PhD
Assistant Professor of Psychology
Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio
Libby Kumin, PhD, CCC-SLP
Professor of Speech-Language Pathology and Audiology
Loyola University Maryland
Baltimore, Maryland
Melissa Parisi, MD, PhD
Chief, Intellectual and Developmental Disabilities Branch
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health
Bethesda, Maryland
Sally Shott, MD
Professor, University of Cincinnati College of Medicine
Department of Pediatrics
Division of Pediatric Otolaryngology - Head & Neck Surgery
Children's Hospital Medical Center
Cincinnati, Ohio
Brian Skotko, MD, MPP
Assistant Professor, Pediatrics
Co-Director, Down Syndrome Program
Massachusetts General Hospital
Harvard University Medical School
Boston, Massachusetts
David Stein, PsyD
Staff Psychologist and Co-Director of Research
The Down Syndrome Program
Director of Quality Improvement, Pediatric Psychology Program
Boston Children’s Hospital
Harvard University Medical School
Boston, Massachusetts
Donna Watkins, MSN, NNP-BC
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, Indiana
Joanne Whelan, RD
Registered Dietitian
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, Indiana
Babette Zemel, PhD
Research Professor of Pediatrics
The Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania


Overall Conference Objective

The purpose of this activity is to engage a group of learners interested in providing state-of-the-art care to persons with Down Syndrome (DS) in lectures and discussions focused on adopting current best practices.

Course Objectives

As a result of their active participation in this course, learners will be able to:

  • State current recommendations and identify resources for transitioning persons with DS to adult care providers
  • Outline needed resources and strategies to address feeding difficulties for children with DS.
  • Specify factors contributing to behavior challenges in people with DS and strategies for effective intervention.
  • Discuss ways to address gaps in knowledge regarding medical care of adults with DS.
  • Identify recent important literature related to the clinical care of people with DS.
  • Describe recent initiatives aimed at data collection to support research in the field of DS.
  • Demonstrate understanding of current progress with development of DS specific growth charts.

Elements of Competence

This CME activity has been designed to change learner knowledge and competence, and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Target Audience

Healthcare providers with a special interest in the care of persons with Down Syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech Therapists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

Administrative Features/CME


Early Registration: Before June 13, 2014
Members in good standing $170
Non-members $195
Students/Trainees $125

Registration: After June 13, 2014
All Attendees $225

Half Day Rate (AM/PM): $110 (no lunch provided)

The conference fee includes all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation/administrative fee, and continental breakfast, lunch, and breaks. Note lunch is not included in the half-day registration. Cancellation through July 3, 2014 will allow a full refund except the $20 cancellation/administrative fee. No refunds will be made for cancellations received after July 3, 2014

Three Easy Ways to Register

  • Online
  • By phone: (608) 262-1397. Please call and give your billing information or pay by MasterCard, Visa or American Express.
  • By fax: 1-800-741-7416 (In Madison, fax 265-3163)


All registrations are confirmed via email. If you do not receive a confirmation, please call (608) 262-1397.

Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the University of Wisconsin School of Medicine and Public Health and the Down Syndrome Medical Interest Group. The University of Wisconsin School of Medicine and Public Health is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation Statement

The University of Wisconsin School of Medicine and Public Health designates this live activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

University of Wisconsin–Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for 0.775 continuing education units (CEUs) or 7.75 hours.

Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin School of Medicine and Public Health that the faculty, authors, planners, and other persons who may influence content of this CME activity disclose all relevant financial relationships with commercial interests in order to allow CME staff to identify and resolve any potential conflicts of interest. Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be made in the activity handout materials.

Planning Committee

Annual Symposium Committee

Kim McConnell, MD (Annual Symposium Committee – Co-Chair)
Neurodevelopmental pediatrician
Gillette Children’s Specialty Healthcare

Maria A. Stanley, MD, FAAP (Annual Symposium Committee- Co-Chair)
Visiting Associate Professor of Pediatrics
Medical Director, Waisman Center
Chief, Neurodevelopmental-Behavioral Pediatrics
University of Wisconsin School of Medicine and Public Health

Fran Hickey, MD
Medical Director, Anna and John Sie Center for Down Syndrome and the Linda Crnic Institute
Associate Professor, Department of Pediatrics, University of Colorado School of Medicine
Children's Hospital Colorado

Katie Frank, PhD (c), MHS, OTR/L
Occupational therapist
University of Illinois at Chicago

Nasreen Talib, MD, MPH
Professor of Pediatrics
Associate Division Chief, General Pediatrics
Medical Director, Down Syndrome Clinic
Children's Mercy Hospitals and Clinics

Poster Committee

Peter Bulova, MD
Associate Professor of Medicine
Director: International Scholars Program
Director: Outpatient Procedure Clinic
Coordinator: Internal Medicine Medical Student Interest Group
Co-Director: Magee Center for Women with Disabilities
Director: University of Pittsburgh Adult Down Syndrome Center

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital

For Further Information

For conference information, please contact the cme [at] pediatrics [dot] wisc [dot] edu (CME Specialist)
E5/417 Clinical Sciences Center, 600 Highland Avenue, Madison, WI 53792
Phone: (608) 263-8542.

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Barbara Anderson at (608) 263-8542.

Last updated: 01/05/2015
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