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CONFERENCE INFORMATION

Friday, June 26, 2015
JW Marriott Phoenix Desert Ridge Resort & Spa - Phoenix, AZ

Register Online

View Handouts

Friday, June 26, 2015

Time Activity
Morning
7:00 Registration/Check-in and Continental Breakfast
8:00 Welcome and Announcements
8:15 Neurologic Issues Across the Life Span in Down Syndrome
Ira Lott, MD
9:00 Alzheimer’s Disease in Down Syndrome
Michael Rafii, MD
9:45 Audience Discussion and Q/A
Ira Lott, MD
Michael Rafii, MD
10:00 Break
10:15 Regression and Functional Decline Among Adolescents and Young Adults with
Down Syndrome: Addressing a Poorly Understood Phenomenon

George Capone, MD
Brian Chicoine, MD (Moderator)
Darlynne Devenny, PhD
Judith Miles, MD
Brian Skotko, MD, MPP
David Smith, MD
11:45 Patient Centered Outcomes Research Institute (PCORI) – An Opportunity for Research Funding
Marilyn Bull, MD
Afternoon
12:00 Lunch & Poster Viewing
1:15 Sleep and Cognition Across the Life Span in Down Syndrome
Jamie Edgin, PhD
1:45 Mental Wellness and Behavioral Health of People with Down Syndrome Across the Life Span: Key Concerns and Case Discussion
Anna Esbensen, PhD
Dennis McGuire, PhD
Lina Patel, PsyD
David Stein, PsyD
2:45 Break
3:00 Down Syndrome Resources for Clinicians and Investigators: An Updated NIH Research Plan and the DS-Connect® Professional Portal
Melissa Parisi, MD, PhD
3:45 There’s No Place Like Home for Sexuality Education:  Helping Families Address Sexuality Issues Across the Life Span
Terri Couwenhoven, MS
Katie Frank, PhD(c), MHS, OTR/L
4:45 Down Syndrome Clinics:  Different Formats, Different Disciplines, Different Patients. What Works, What Doesn't?
Nicole Baumer, MD, MEd
Robin Blitz, MD (Moderator)
Peter Bulova, MD
Jeff Reznik, MD
Kishore Vellody, MD
Andrea Videlefsky, MD
5:45 Adjourn & Poster Viewing
6:30 End



OTHER ACTIVITIES

DSMIG-USA® Member Meeting
Thursday, June 25, 2015
5:30-6:30 PM

All members are invited to attend to learn more about the work of the organization over this past year and about opportunities to become more involved.

Welcome Reception and Poster Viewing
Thursday, June 25, 2015
7:00-8:30 PM

Clinic Coordinators Meeting
Friday, June 26, 2015
6:30-8:30 PM

RSVP to tcouwenhoven [at] chw [dot] org (Terri Couwenhoven)




2015 Down Syndrome Medical Interest Group – USA
(DSMIG-USA®) Annual Symposium

This symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers. Residents and trainees are welcome to attend.

 

DSMIG-USA® 2015 Annual Symposium - Conference Faculty
Nicole Baumer, MD, MEd                                
Neurodevelopmental Disabilities
Child Neurology                
Co-Director, Down Syndrome Program 
Boston Children’s Hospital
Harvard Medical School
Boston, MA
Robin Blitz, MD
Clinical Associate Professor
University of Arizona College of Medicine
Director, Developmental Pediatrics and The Pediatric Down Syndrome Clinic
Barrow Neurological Institute at Phoenix Children's Hospital
Phoenix, AZ
Marilyn Bull, MD
Morris Green Professor of Pediatrics
Developmental Pediatrics
Riley Hospital for Children at IU Health
Indiana University
Indianapolis, IN
Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA
George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD
Brian Chicoine, MD
Medical Director, Advocate Medical
Group Adult Down Syndrome Center
Family Medicine Residency of Advocate
Lutheran General Hospital
Park Ridge, IL
Terri Couwenhoven, MS
AASECT Certified Sex Educator
Clinic Coordinator-Down Syndrome Clinic
Children’s Hospital of Wisconsin
Milwaukee, WI
Darlynne Devenny, PhD
Department of Psychology
New York State Institute for Basic Research
Staten Island, NY
Jamie Edgin, PhD
Assistant Professor
Department of Psychology and the Sonoran UCEDD
University of Arizona
Tucson, AZ
Anna Esbensen, PhD
Assistant Professor of Psychology
Developmental and Behavioral Pediatrics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Katie Frank, PhD(c), MHS, OTR/L
Occupational Therapist
University of Illinois at Chicago
Chicago, IL
Ira Lott, MD
Pediatric Neurologist, UCI and CHOC Children’s
Director, Down Syndrome Program
Professor Emeritus of Pediatrics and Neurology
UCI School of Medicine                                    
Irvine, CA
Dennis McGuire, PhD
Senior Consultant
Global Down Syndrome Foundation
Denver, CO
Judith H. Miles, MD, PhD
Professor Emerita, Child Health, Genetics & Pathology
University of Missouri Health Care
Department of Child Health
Thompson Center for Autism and Neurodevelopmental Disorders
Columbia, MO
Melissa A. Parisi, MD, PhD
Chief, Intellectual and Developmental Disabilities Branch
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health
Bethesda, MD
Lina Patel, PsyD
Senior Instructor
Director of Psychology for the Sie Center for Down Syndrome
Children's Hospital Colorado
Denver, CO
Michael S. Rafii, MD, PhD
Director, Memory Disorders Clinic
Clinical Director, Down Syndrome Research and Treatment Center
Medical Director, Alzheimer's Disease Cooperative Study
Director, Neurology Residency Training Program
Assistant Professor of Neurosciences
UC San Diego Health System
San Diego, CA
Jeff Reznik, MD
Urban Family Practice Associates
President, Adult Disability Medical Home
Marietta, GA
Brian Skotko, MD, MPP
Assistant Professor, Pediatrics
Co-Director, Down Syndrome Program
Massachusetts General Hospital
Harvard Medical School
Boston, MA
David S. Smith, MD
Medical Director, Down Syndrome Clinic of Wisconsin
Children’s Hospital of Wisconsin
Milwaukee, WI
David S. Stein, PsyD
Pediatric Psychologist
Co-Director, The Down Syndrome Program
The Development Medicine Center
Boston Children’s Hospital
Harvard Medical School
Boston, MA
Kishore Vellody, MD
Associate Professor of Pediatrics
Children's Hospital of Pittsburgh, Diagnostic Referral Service
Medical Director, Down Syndrome Center of Western PA
Director, Evening Hospitalist Program
Pittsburgh, PA
Andrea Videlefsky, MD
Urban Family Practice Associates
Vice President, Adult Disability Medical Home
Medical Co-Director, Adult Disability Medical Home
Marietta, GA
 

 

Overall Conference Objective

The purpose of this activity is to engage a group of learners interested in providing state-of-the-art care to persons with Down syndrome (DS) in lectures and discussions focused on adopting current best practices.

Course Objectives

Upon completion of this activity, participants will be able to:

  • Discuss neurologic issues and their manifestations, including Alzheimer’s disease, that can occur in persons with Down syndrome.
  • Outline various models for developing and maintaining a Down syndrome clinic.
  • Specify understanding of, and ways to support, healthy sexuality for individuals with Down syndrome.
  • Discuss current understanding of regression in persons with Down syndrome and identify current gaps in knowledge about this phenomenon.
  • Describe NIH initiatives related to Down syndrome including new research plans and progress with NIH-sponsored research registry.
  • Demonstrate understanding of current knowledge regarding impact of obstructive sleep apnea on cognition.

Elements of Competence

This CME activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement.

Target Audience

Health care providers with a special interest in the care of persons with Down syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech-Language Pathologists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

Administrative Features/CME

Fee (pre-payment is required!)

Early Registration: Through May 31, 2015
Members in good standing $150
Non-members $175
Students/Trainees $125

Registration: After May 31, 2015
All Attendees $200

Half Day Rate (AM/PM): $100 (no lunch provided)

The conference fee includes all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks. Note: lunch is not included in the half-day registration. Cancellations through May 31 will receive a full refund minus the $20 cancellation fee; after May 31 through June 10 there will be a 50% refund. No refunds will be made for cancellations received after June 10.

Three Easy Ways to Register

  • Online
  • By phone: (608) 262-1397. Please call and pay by MasterCard, Visa or American Express.
  • By fax: 1-800-741-7416 (In Madison, fax 265-3163)

Confirmations

All registrations are confirmed via email. If you do not receive a confirmation, please call (608) 262-1397.

Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the University of Wisconsin School of Medicine and Public Health and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin School of Medicine and Public Health is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation Statement

The University of Wisconsin School of Medicine and Public Health designates this live activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education Units

The University of Wisconsin–Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for 0.775 continuing education units (CEUs) or 7.75 hours.

Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin School of Medicine and Public Health that the faculty, authors, planners, and other persons who may influence content of this CME activity disclose all relevant financial relationships with commercial interests in order to allow CME staff to identify and resolve any potential conflicts of interest. Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be made in the activity handout materials.

Hotel Accommodations

The DSMIG-USA® Annual Symposium will be held at the JW Marriott Phoenix Desert Ridge Resort & Spa, 5350 E. Marriott Drive, Phoenix, AZ 85054.  This is the site of the National Down Syndrome Congress Convention, June 25-28.

The National Down Syndrome Congress (NDSC) has graciously allowed the DSMIG-USA® attendees to register in the NDSC room block at the JW Marriott; DSMIG-USA® attendees will receive the NDSC rate. For more information about hotel registration go to http://convention.ndsccenter.org/hotel-travel/.

Please note:

  • The NDSC room block at the JW Marriott is currently full. See how to make a reservation on the WAIT LIST.
  • There is information on the site about 3 nearby overflow hotels.

Audience Response Tool for Down Syndrome Clinics Presentation:  Poll Everywhere

We will be engaging everyone using an audience response system called Poll Everywhere.  Any phone that can text can be used. Please remember to have your phones charged and ready to text for our afternoon presentation: “Down Syndrome Clinics: Different Formats, Different Disciplines, Different Patients. What Works, What Doesn’t?”

 

Annual Symposium Committee

Robin Blitz, MD
Clinical Associate Professor
University of Arizona College of Medicine
Director, Developmental Pediatrics and The Pediatric Down Syndrome Clinic
Barrow Neurological Institute at Phoenix Children's Hospital
Phoenix, AZ

Katie Frank, PhD(c), MHS, OTR/L
Occupational Therapist
University of Illinois at Chicago
Chicago, IL

Kim McConnell, MD, FAAP
Annual Symposium Committee Co-Chair
Gillette Children’s Specialty Healthcare
St. Paul, MN

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

Maria A. Stanley, MD, FAAP
Annual Symposium Committee Co-Chair
Clinical Associate Professor of Pediatrics
Medical Director, Waisman Center
Director, Down Syndrome Clinic
University of Wisconsin School of Medicine and Public Health
Madison, WI

Poster Planning Group

Nicole Baumer, MD, MEd
Neurodevelopmental Disabilities, Child Neurology
Co-Director, Down Syndrome Program 
Boston Children’s Hospital
Harvard Medical School
Boston, MA

Peter Bulova, MD
Associate Professor of Medicine
Co-Director, Magee Center for Women with Disabilities
Director, University of Pittsburgh Adult Down Syndrome Center
Pittsburgh, PA

George Capone, MD
Associate Professor of Pediatrics
Johns Hopkins School of Medicine
Director, Down Syndrome Clinic & Research Center
Kennedy Krieger Institute
Baltimore, MD

David S. Stein, PsyD
Pediatric Psychologist
Co-Director, The Down Syndrome Program
The Developmental Medicine Center
Boston Children's Hospital
Harvard Medical School
Boston, MA

Nancy J. Roizen, MD
Director, Division of Developmental/Behavioral Pediatrics and Psychology
Professor of Pediatrics
Rainbow Babies and Children's Hospital
Cleveland, OH

For Further Information

For conference information, please contact cjmeans [at] ocpd [dot] wisc [dot] edu (Cathy Means, UW Office of Continuing Professional Development); Phone: (608) 262-3729.

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.

The University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof. Any participant in this educational activity who may need accommodations should notify Cathy Means at (608) 262-3729.

Last updated: 06/26/2015
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